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FND- how things started..

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4.5 years after my FND hit, I’ve decided to share an old post that I shared on my previous blog 4 years ago today. A reminder of all I went through and what my FND was like at the start. This is why the 5K was such an achievement and milestone for me! —- Advanced warning - this post is  long ! Fellow fatigued people in particular- you may not want to read all at once! In the past I've shared all my medical battles and worries on here very openly. In the past, things have gone quiet only when I was too ill to write, too busy to, or there was little change so little to share. This time it's been a bit different. My long silence hasn't really been entirely for any of those reasons. The truth is that I needed some time and space to process things and understand things privately. When I received my first chronic illness diagnosis, it was many months before I talked openly about it with anyone; this time I was having to have daily discussions with doctors for mon
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The Reality of Life with FND

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The second blog post today is about the reality of living with FND. It's not all smiles and rainbows and achieving long-standing aims. Yes, it's brilliant I completed the 5K, but the truth is I'd be nowhere near well enough to complete the same again now. Functional Neurological Disorder is a relapsing condition. This has been drilled into me. It fluctuates. Stress is massive factor (physical or psychological) in leading to relapses. I had a lot of stress earlier this year, and let's just say- it took its toll. Tackling and living successfully with FND is all about being able to ride the waves and manage relapses. It's about being able to cope (physically and mentally) with the symptoms. I'm getting there, I'd say. My seizures are an ongoing issue. Like, daily. It's really hard if I'm honest. You feel like you have to brief everyone new that comes into your life in any capacity. And the anxiety that comes with them, for me, is a mass
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We did it!!!

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This is the first of 2 blog posts I'm going to put up today, this one is a positive one about how the actual 'race' went. I completed it!! I'm so delighted. We ran in short bursts- I'd say we ran half, walked half in the end. Met some lovely, supportive people along the way. It was super-hard but a fab experience! So grateful to have made it round the course without issues  🙌🏻 Now for some photos: So proud of the money we raised and so so so so so grateful to all who donated!! My journey as a full time wheelchair user started in 2015, and 4 years later I completed a 5K. Delighted. It’s been a long, tough road, but I made it round on the day!!
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Less than 2 days to go!!

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Eek- the 5K is now THE DAY AFTER TOMORROW! I’m travelling up to Newcastle tomorrow and then the actual ‘race’ is at 8 the next morning. I’m a mix of excited and nervous..! It’s a big deal for me; I’ve been building up to this ever since I started learning to walk again 3 years ago. My rehab journey has been a tough and long one.. It has challenged me both physically and mentally. I’m in a good place now though, and feel ready to face this challenge. I just can’t wait for the finish line!!! It’s been a long fight to get back on my feet; I gradually lost my mobility from 2009 through to 2015 when I lost it completely after a long bout of non-epileptic seizures. I then had 10 weeks in hospital mostly in bed, followed by nearly a year using a wheelchair full-time, before my rehab started. I spent 6 weeks on Ashby Ward in Lincoln County Hospital and left able to take a couple of wobbly steps (it doesn’t sound like a massive achievement but it truly meant the world to even be able to sta
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2 weeks to go!!

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Just under 2 weeks to go until I face my 5K with my Mum and friend Katie beside me! I’m nervously excited but it’s going to be a real, real challenge!! I’ve been for walks with both my mum... And friend Katie.. So hopefully we’ll be ready to face it!! Medically I’m doing fairly well. Hopefully seizures won’t strike during the course, but other than that I’m doing pretty well really! The heat is hard with my dysautonomia and I’m still finding work tiring but I’m coping ☺️ Please consider donating over on  https://uk.virginmoneygiving.com/Team/TeamJess1  and please please please spread the word!!
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